Other people whose lives are impacted by FCS or very high triglycerides open up to share their stories with you.
Julie’s Story
The Power of Knowing
Meet Julie—mother, wife, and person living with FCS. Join her as she shares her long road
to diagnosis, discussing how identifying her condition has not only shaped her into the
person she is today, but has also helped her manage the burden of her very high
triglycerides.
I think a good primary care doctor can coordinate the little things like the standing orders for triglyceride draws.
—Julie, living with FCS
Scott’s Story
Becoming Your Best Advocate
For years, Scott was pushed off by doctors, facing the constant misdiagnoses and stigma
that many people with FCS experience. Fueled by a drive to get to the bottom of his
symptoms, Scott became an advocate not only for himself, but also for the greater FCS
patient community.
Once I finally had a diagnosis and got close to figuring it out, I jumped both feet in into finding people that had this disease as well because I had been on an island by myself for so long. Just the thought of knowing that there is someone else in this world that has this same thing was very comforting to me.
—Scott, living with FCS
Fin & Devon’s Story
Living Beyond FCS: A Family Affair
Fin and Devon – father and caregiver, and son with FCS – share how they’ve learned to live
with a FCS diagnosis. With the help of an early diagnosis and a strong support system
every step of the way, the duo have learned creative ways to approach life. Because life
shouldn’t be defined by FCS.
You may have FCS, you may care for someone with FCS, but that’s not who you are. That’s just a part of your life. The things you love in life are really important to keep loving because that’s where your positivity comes from.
– Fin, father and caregiver to Devon, living with FCS
Jill’s Story
Reclaiming Your FCS Journey
Jill has never known what it's like to not have FCS. Despite facing adversity every step
of the way, the mother, caregiver, and founder of Action FCS has found a way to reclaim
her FCS journey. Listen as she shares her reality of living with FCS, and how it led her
to become an advocate for the greater patient community.
It's got to be an engagement between two equals, not doctor-patient because you probably don't know as much as I do about my lived experience, and I probably don't know as much as you do about the medical aspect of it. So let's work together, and we can find a better outcome for everyone.
– Jill, living with FCS
Your experience could help others who are struggling with very high triglycerides
